At the Risk...

Cailyn loved Zebras. This is Lucy the Zebra, who Cailyn made friends with this summer. Her owner brought her to M.D. Anderson a few days ago to visit Cailyn. 

She passed away early this morning. I appreciate all the prayers, and help raising money for treatment, the cards, and support from my Tumblr family. Please continue to pray for my family. 

attherisk:

Keep Cailyn in your prayers; our family hasn’t given up, but the doctors seem to be well on their way to giving up. Yes, we understand this is a ‘fatal-upon-diagnosis’ cancer, but we will never stop fighting for her! Cailyn will be returning home to Florida on November 17th. Since we are unsure of what the future holds for her, she will be celebrating Christmas shortly after her arrival home. Any cards or letters of support to her would be greatly appreciated. Message me if you’d like to send her one.

Edit: Just received word that Caitlin Downing, a 5 year old girl diagnosed about 3 months before my niece, lost her fight with DIPG on 11-10-12. Please keep her family in prayer as well. 

I am BEGGING anyone with any ideas or knowledge of alternative treatments to contact me.  This is the 2nd DIPG related death I’ve learned of just this week. We will try anything at this point. HELP.

Keep Cailyn in your prayers; our family hasn’t given up, but the doctors seem to be well on their way to giving up. Yes, we understand this is a ‘fatal-upon-diagnosis’ cancer, but we will never stop fighting for her! Cailyn will be returning home to Florida on November 17th. Since we are unsure of what the future holds for her, she will be celebrating Christmas shortly after her arrival home. Any cards or letters of support to her would be greatly appreciated. Message me if you’d like to send her one.

Edit: Just received word that Caitlin Downing, a 5 year old girl diagnosed about 3 months before my niece, lost her fight with DIPG on 11-10-12. Please keep her family in prayer as well. 

I am BEGGING anyone with any ideas or knowledge of alternative treatments to contact me.  This is the 2nd DIPG related death I’ve learned of just this week. We will try anything at this point. HELP.

Update on Cailyn:

Our sweet girl is currently at M.D. Anderson Cancer Center in Houston facing surgery to have a shunt inserted to relieve swelling of her brain. Our family needs your prayers and thoughts now more than ever. Only 30% of DIPG patients make it 9 months after diagnosis, and Cailyn was diagnosed in March. She has gone through radiation and chemo (which DIPG is resistant to) and treatment has so far been unsuccessful. 

I’m struggling with understanding why and how this happens to 4 year old. BUT I’M NOT GIVING UP YET. I’ve seen more than one miracle in my life and I’m asking you all to join me in asking whatever G-d you believe in for one more for my precious niece. 

attherisk:

I don’t know about you, but this looks like a little girl that can kick cancer’s ass!

Update on Cailyn! Her MRI results came back today- her tumors are stable and seem to be decreasing…onward with another round of chemo. Thank you all for your prayers and thoughts. 

I don’t know about you, but this looks like a little girl that can kick cancer’s ass!

For those of you who would like to leave personal words of encouragement, or follow Cailyn’s journey, you may do so here. Thank you again for all the support from the Tumblr community. 

attherisk:

For those of you who have been praying for my niece Cailyn, I want to thank you. 

She was unable to get into the clinical trial in New York this summer, but after one round of radiation her tumors shrank by 60%. 

Unfortunately it was discovered this week that they are growing back, and more aggressively than ever; they are growing along the brain stem, so again, it can’t be operated on. 

My brother and his wife will be having hospice come into the house next week. I ask that you continue to pray for my family in this rough time.

I’m still holding out for a miracle from Hashem, the creator of life.   

I would like to organize a tumblr vigil for Sunday night at 8pm CST for those interested so we can show Cailyn that she is still close to our hearts. Contact me if you’d like to participate. 

I’m not ready to let DIPG win just yet, fuck the odds and fuck the numbers.  

Tonight at 8p CST I’d like to ask my tumblr friends to take a moment to send some good energy, prayers, or thoughts out into the atmosphere for my sweet 4 year old niece. I’m not ready to believe that this is all there is for her, and I am asking you all to reblog this post with a special note for Cailyn. I’ll be sending them her way tomorrow. 

For those of you who have been praying for my niece Cailyn, I want to thank you. 

She was unable to get into the clinical trial in New York this summer, but after one round of radiation her tumors shrank by 60%. 

Unfortunately it was discovered this week that they are growing back, and more aggressively than ever; they are growing along the brain stem, so again, it can’t be operated on. 

My brother and his wife will be having hospice come into the house next week. I ask that you continue to pray for my family in this rough time.

I’m still holding out for a miracle from Hashem, the creator of life.   

I would like to organize a tumblr vigil for Sunday night at 8pm CST for those interested so we can show Cailyn that she is still close to our hearts. Contact me if you’d like to participate. 

I’m not ready to let DIPG win just yet, fuck the odds and fuck the numbers.  

attherisk:

This is my attempt at puppy dog eyes. These are for my followers that are more “Tumblr Famous” than I am. I understand you owe me NOTHING, but I am pleading with you to please reblog the post about my niece’s cancer treatment. I never ever ever ask for anything like this and it’s for a sweet little 3 year old who is right now looking at about 8 months to live. PLEASE help my family raise the money for her to seek treatment that her insurance will not cover. (THANKS U.S. NAVY AND YOUR SHITTY MILITARY INSURANCE!)

Also, a huge thank you to FUCKYEAHMEDICALSTUFF for helping me promote this cause. Thanks to her reach we were able to raise $200 since yesterday, only 98% more of our goal to go. 

This is my attempt at puppy dog eyes. These are for my followers that are more “Tumblr Famous” than I am. I understand you owe me NOTHING, but I am pleading with you to please reblog the post about my niece’s cancer treatment. I never ever ever ask for anything like this and it’s for a sweet little 3 year old who is right now looking at about 8 months to live. PLEASE help my family raise the money for her to seek treatment that her insurance will not cover. (THANKS U.S. NAVY AND YOUR SHITTY MILITARY INSURANCE!)

Also, a huge thank you to FUCKYEAHMEDICALSTUFF for helping me promote this cause. Thanks to her reach we were able to raise $200 since yesterday, only 98% more of our goal to go.